"Building Actionable Rare Disease Registries in the age of EHRs to Power ..."

Steven E. Labkoff et al. (2020)

> Home

Details and statistics

DOI: —

access: closed

type: Conference or Workshop Paper

metadata version: 2024-04-17

- view
  - electronic edition @ amia.org (archived)
- export record
  dblp key:
  - conf/amia/LabkoffREB20
- ask others
- share record
  persistent URL:
  - https://dblp.org/rec/conf/amia/LabkoffREB20
Steven E. Labkoff, Leon Rozenblit, Alexander Elbert, Rimma Belenkaya:
Building Actionable Rare Disease Registries in the age of EHRs to Power Personalized Medicine: Lessons Learned in Standards, Data Models, Data Engineering, Patient Inclusion, and Regulatory Challenges. AMIA 2020

a service of

manage site settings

To protect your privacy, all features that rely on external API calls from your browser are turned off by default. You need to opt-in for them to become active. All settings here will be stored as cookies with your web browser. For more information see our F.A.Q.