"The NIH Office of Rare Diseases Research Patient Registry Standard: A ..."

Shamsi Daneshvari, Sarah Youssof, Philip J. Kroth (2013)

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type: Conference or Workshop Paper

metadata version: 2024-04-17

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Shamsi Daneshvari, Sarah Youssof, Philip J. Kroth:
The NIH Office of Rare Diseases Research Patient Registry Standard: A Report from the University of New Mexico's Oculopharyngeal Muscular Dystrophy Patient Registry. AMIA 2013

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